After participating in the Ice Bucket Challenge, Hiddleston struck again, fundraising for another worthy charity. This time for Sohana's Research Fund, which raises money for a skin condition called Epidermolysis Bullosa. Like the Ice Bucket Challenge, it raises awareness by issuing a challenge, in this case, reciting a tongue twister. Participants are then encouraged to nominate friends to keep the message going.
Epidermolysis Bullosa is a genetic skin blistering condition that affects over 500,000 people around the world, but very few people have heard of it. Those who have realize what a devastating impact it has on sufferers and their families. It is unrelenting in its pain and unrelenting in the distress it causes.
Because there is no treatment and no cure and as a relatively rare condition it has been easy to ignore.
Groundbreaking research is on the point of delivering treatments and possibly a cure. The work to get there will help people with many other genetic conditions.
It affects both sexes and every racial and ethnic background equally.
EB results from a genetic mutation in one of the genes that have been found to cause the disorder.
There are four main types – Simplex/Junctional/Dystrophic/Kindler
Milder forms of EB cause extensive pain and blistering but do not disfigure and are not lethal.
Severe forms cause death in the first few months of life (Herlitz Junctional) or mitten deformities, extensive skin loss (like burns), anaemia, difficulty swallowing, microstomia (small mouth opening), corneal scarring (sometimes blindness), malnourishment, and eventual death from skin cancer usually between the ages of 20-30 years. SRF
Tom Hiddleston is at it again; helping the world one cute video at a time. And, of course, we love it.
The Thor actor was nominated by fellow British actor Damian Lewis to take part in a charity challenge that brings awareness and fundraising to the skin disorder Epidermolysis Bullosa. Lewis’s friend suffers from the condition, making the challenge close to his heart.
Hiddleston starts off the challenge by introducing himself in the below video. We know who you are Tom, but, he’s right, there’s the chance that someone out there might not. He explains that he’s responding, “a thousand years late to Damian’s challenge,” but it’s better late than never.
The challenge is for Hiddleston to give a tongue twister, and if he messes up, he then makes a donation.
If you didn’t quite get what he was saying, here’s the tongue twister written out:
Dick had a dog, the dog dug, the dog dug deep, how deep did Dick’s dog dig? Dick had a duck, the duck dived, the duck dived deep, how deep did Dick’s duck dive? Dick’s duck dived as deep as Dick’s dog dug!
Hiddleston has now challenged Charlie Hunnam (Sons of Anarchy), Dominic West(The Affair), and Gemma Arterton (Tamara Drewe).